June 21, 2022

Moving the Needle on ALS & Neuromuscular Disorders

Date and time

June 21, 2022 ~ June 21, 2022

8:00am - 10:30am PDT | 11:00am - 1:30 pm EDT

7:00pm - 9:30pm PDT | 10:00pm - 12:30am EDT

Dear Colleagues & Friends,

We are honored to have been able to unite 3,000+ colleagues this year from around the world for our virtual event, “Moving the Needle on ALS & Neuromuscular Disorders,” on June 21st, 2022. Together we were able to enhance awareness and provide a global stage for key stakeholders to connect and collaborate to overcome barriers to finding cures for these devastating rare diseases.

This is our 9th episode of our “Collaborations That Transform” series. At WuXi AppTec, we are dedicated to providing a platform to catalyze transformational change for patients.

Special thanks to our more than 20 distinguished speakers, and to our supportive partners: ALS Association, Muscular Dystrophy Association, Motor Neurone Disease Association Singapore, and Beijing Oriental Rain ALS/MND Care Center.

Thank you again, and make sure to follow us on Twitter and LinkedIn, and visit our WXPress website to stay up-to-date on upcoming WuXi AppTec news and events.

If you have any questions, please contact us at wuxiforum@wuxiapptec.com.

Agenda

08:00 AM - 08:10 AM Welcome
Hui Cai, Program Chair, VP & Head of Content, WuXi AppTec
Calaneet Balas, President & CEO, The ALS Association
Lin Kah Ooi, Founding President, Motor Neurone Disease Association Singapore
08:10 AM - 08:40 AM The Unmet Needs in Neuromuscular Disorders
Carsten Bönnemann, Chief, Neuromuscular & Neurogenetic Disorders of Childhood Section; Senior Investigator & Acting Chief, Neurogenetics Branch, NINDS, NIH
Matthew Harms, Associate Professor of Neurology, Institute for Genomic Medicine, Columbia University
Moderator: Sharon Hesterlee, Chief Research Officer, Muscular Dystrophy Association
08:40 AM - 09:10 AM Spotlight on ALS
Kuldip Dave, SVP of Research, The ALS Association
Sabrina Paganoni, Co-Director, Neurological Research Institute at Massachusetts General Hospital; Physician Scientist, Healey & AMG Center for ALS
Jeffrey Rothstein, Director of Brain Science Institute, Director, Robert Packard Center for ALS Research, Johns Hopkins University
09:10 AM - 09:50 AM In the Pipeline
Neil Cashman, CSO, ProMIS Neurosciences; Professor Emeritus, University of British Columbia
Michael McGrath, UCSF Emeritus Professor of Medicine; CSO & Founder, Neuvivo
Robert Scannevin, CSO, Verge Genomics
Fernando Vieira, CEO & CSO, ALS Therapy Development Institute
Moderator: Murali Gopalakrishnan, Global Head, Neuroscience Search & Evaluation, Corporate Strategy Office, AbbVie
09:50 AM - 10:20 AM Challenges and Opportunities in New Modalities
Jim Burns, CEO, Locanabio
Clive Svendsen, Professor & Executive Director, Board of Governors Regenerative Medicine Institute
Moderator: Bibhash Mukhopadhyay, Managing Partner, Sound Bioventures
10:20 AM - 10:25 AM The Future of Genetic and Personalized Medicines
Michael Snyder, Professor & Chair, Department of Genetics; Director, Center for Genomics and Personalized Medicine, Stanford University
10:25 AM - 10:30 AM Closing Remarks
Richard Soll, Head of Boston Office and Senior Advisor of Strategic Initiatives, WuXi AppTec

Speakers

Hui Cai
PROGRAM CHAIR, VP & HEAD OF CONTENT, WUXI APPTEC
Calaneet Balas
PRESIDENT & CEO, THE ALS ASSOCIATION
Lin Kah Ooi
FOUNDING PRESIDENT, MOTOR NEURONE DISEASE ASSOCIATION SINGAPORE
Carsten Bönnemann
CHIEF, NEUROMUSCULAR & NEUROGENETIC DISORDERS OF CHILDHOOD SECTION; SENIOR INVESTIGATOR & ACTING CHIEF, NEUROGENETICS BRANCH, NINDS, NIH
Matthew Harms
ASSOCIATE PROFESSOR OF NEUROLOGY, INSTITUTE FOR GENOMIC MEDICINE, COLUMBIA UNIVERSITY
Sharon Hesterlee
CHIEF RESEARCH OFFICER, MUSCULAR DYSTROPHY ASSOCIATION
Kuldip Dave
SVP OF RESEARCH, THE ALS ASSOCIATION
Sabrina Paganoni
CO-DIRECTOR, NEUROLOGICAL RESEARCH INSTITUTE AT MASSACHUSETTS GENERAL HOSPITAL; PHYSICIAN SCIENTIST, HEALEY & AMG CENTER FOR ALS
Jeffrey Rothstein
DIRECTOR OF BRAIN SCIENCE INSTITUTE, DIRECTOR, ROBERT PACKARD CENTER FOR ALS RESEARCH, JOHNS HOPKINS UNIVERSITY
Murali Gopalakrishnan
GLOBAL HEAD, SEARCH & EVALUATION-NEUROSCIENCE IN THE CORPORATE STRATEGY OFFICE, ABBVIE
Neil Cashman
CSO, PROMIS NEUROSCIENCES; PROFESSOR, EMERITUS UNIVERSITY OF BRITISH COLUMBIA
Michael McGrath
UCSF EMERITUS PROFESSOR OF MEDICINE; CSO & FOUNDER, NEUVIVO
Robert Scannevin
CSO, VERGE GENOMICS
Fernando Vieira
CEO & CSO, ALS THERAPY DEVELOPMENT INSTITUTE
Bibhash Mukhopadhyay
MANAGING PARTNER, SOUND BIOVENTURES
Jim Burns
CEO, LOCANABIO
Clive Svendsen
PROFESSOR & EXECUTIVE DIRECTOR, BOARD OF GOVERNORS REGENERATIVE MEDICINE INSTITUTE
Michael Snyder
PROFESSOR & CHAIR, DEPARTMENT OF GENETICS; DIRECTOR, CENTER FOR GENOMICS AND PERSONALIZED MEDICINE, STANFORD UNIVERSITY
Richard Soll
HEAD OF BOSTON OFFICE AND SENIOR ADVISOR OF STRATEGIC INITIATIVES, WUXI APPTEC